I live with my boyfriend in our own flat, and he works full time. But my vertigo is getting worse, and iām at the stage where nothing seems to be helping me, and most days I canāt even lift my head off the pillow and have to stay in bed all day. Itās because of this, that I canāt work. (I doubt iāll be getting any better soon, when I have been exactly like this since I was 3 years old). Anyways, my boyfriend earns just enough money to pay the rent, and council tax and all the other bills, so at the end of all this we have very little money left over. If I could work, things would be a lot better. I get no money due to not being able to work, and I feel so guilty. I absolutely hate the fact that my boyfriend is out working full time and itās only enough to cover bills, because I feel like because of my vertigo he is also suffering in some way because he works a lot and doesnāt really get anything nice in return. But right now itās physically impossible for me to work:( I really really want and need to get better soon, so I can start being able to live my life instead of being stuck in bed all day every day and missing out on work as well as fun things like being able to go on fun outings etc. (I was doing volunteer work in Cancer Research charity shop, which I loved, but i had to stop as I was off sick too many times, and kept letting other volunteers down, and It was such a struggle for me)
Can anyone help me? I just need some advice please?
My symptoms are dizziness, sore head, vomiting etc. I feel like iām never away from seeing my doctor, but he doesnāt seem to want to help. All he ever gives me is propanolol tablets and they donāt help. Thank you very much to anyone who has taken the time to read this, and to anyone who replies. I really appreciate it 
I just want to be able to live a normal life and stop feeling so guilty all the time.
where do you live? can u get some type of disability payment? have u seen a neurotologist? what meds have u tried besides propanolol?
Thank you for your reply
I live in scotland, and I havenāt seen a neurologist. I have asked my doctor to refer me to specialists etc but he always says ātry tablets firstā and the only tablets he has ever given me is prochlorperazine and propanolol.
I wasnāt too keen on getting any type of benefits, because it means iād have to go for medical examinations every so often. I went for one before and the person who was examining me and asking me loads of questions, just sat there judging me and she treated me horribly because this isnāt a physical disability, so of course I looked normal on the outside. Itās kinda put me off any sort of benefit, so for now iād rather just struggle through and pray and hope that this dizziness wonāt be forever. Thanks to finding this support forum, at least I have some understanding of mav
Thanks again for taking your time to read and reply
how did you conclude that you have mav if you havenāt been given the diagnosis? can you see a different primary care dr. to get your referred to a neurotologist? you say you have had this since you were 3, were u ever given care for this? were you able to go to school? how did you meet your boyfriend if you canāt leave the house? im sorry to hear the volunteer position didnāt work out, there must be something you can do where if you canāt make it they wonāt tell you to stop, that is unfair to you.
Hi:) From the age of 3, my mum took me to the doctor at least twice a month, but he kept saying to me that it was ājust a virusā. It was when I was 16, that my doctor told me that it was Mav that I had. He gave me some tablets and for the last couple of years, all he does is gives me tablets, then when I say they arenāt helping me, he just tells me to ākeep on trying themā.
I was off school a lot, most days I got sent him. My attendance at school was rarely above 30%, so I was given a tutor to help me at home, but I missed 2 of my final exams:(
I met my boyfriend a couple of years ago, as my cousin knew him. My cousin knew of the situation I was in so when she came to see me, she brought him along. For a year we were just friends, and mostly just texted, unless he came to see me at my house. He kept asking me to go out with him, but I constantly thought of excuses not to as I didnāt want to tell him that I had mav and lived most of my life in bed unwell. But then when i got the courage to tell him, he told me he would be there etc and he understood so we got together.
Iāve tried looking for other volunteer positions, as I know that with the situation iām in just now that I wonāt be able to do a paid job as I would be told to leave, so hopefully something becomes available:)
Iād just like to say thank you for taking your time to reply
I empathise with your struggle. Looks like you found a good guy, so you want to hold onto that. financial stress can be a big part of relationship breakdown, so you have to get yourself on some type of benefit to ease the load and also so you have some money of your own. Itās hard to do any of this stuff when youre cognitively affected by the office enviroment, or get dizzy talking to people.
look up vestibular.org they have some good info and a printout ātips on applying for social security with a vestibular disorderā. the stress of dealing with all this and a doctor who doesnāt understand, and feeling like a fraud because some days you feel ok, I get it.
you might need the doctor who knows you for the moment to help with the disabilty application, also having a social worker or cousellor who can provide letters or advocate on your behalf. in the long run youāll be better off, they may provide access to training of something you can join that is no pressure that you might enjoy.
have you seen this same neurologist since age 3, or did you see anyone else? have u seen a neurotologist or otoneurologist? is the only migraine med u have tried propanolol? there are several others out there to try.
im sorry to hear you have had this almost ur whole life, I canāt imagine what that must have been like. how old are you now? donāt feel bad about applying for disability, this IS a disability, even if its not always visible. Are you able to walk ok without assistance? can u drive?
sorry i got confused, so your whole life, have you just had this same primary care dr.? have you never been sent to specialists, ever? I am from the US so I donāt know how your health care system works is it hard to see specialists?
First off get a new doctor post haste. If that doesnāt work keep trying until you get one that listens to you. You are not crazy and clearly need help. Do you get migraines as well? You do not say. Have you tried diet modification? Try going gluten free.