Vent away GalGo! The Monster is really the pits!
Yes, I was good until end of last year then gave up my thrice weekly run. I did really well January but I've steadily got worse and had several relapses including the emergence of tinnitus in my better ear (which died down thankfully).
Yes, the Hyperacusis & Tinnutus has got slightly better as has HF hearing because when I'm on my local light railway the moving alarm is much less painful now. I think the brain has a hand in making it better because my dizziness is not always better.
But here's what you may need to do to help yourself as much as possible:
- do as much exercise as possible for all sorts of reasons
- eat healthily as possible and avoid 'crap'
I've started on a working hypothesis that MAV is a lot like Menieres but without the profound hearing loss. I'm convinced now there is an element of retention of water in the ear - i.e. Hydrops.
There are a few things you can do to reduce this - eat diuretic foods (there are some good lists on the web) avoid excess carbs, avoid nasty salty snacks, drink lots and lots of herbal tea and make sure you do enough exercise so you sweat! This advice is probably similar to 'the migraine diet' but its calling it out for what it is - preventing you retain water - which I believe is the crux of the problem. I could be wrong but why not try? I note that one board member - Beatles909 - instigated a big exercise program and cleaned up his diet and without meds became dizzy free, so it can be done!
Yes I haven't increased my Ami above 20mg, but in any case I think these drugs are simply 'covering up the cracks' and making life more bearable. To make yourself truly better you need to address the pressure in the ear. Try those things I've suggested and report back!! One possible medication I might consider is a diuretic, but you may be able to achieve the result more healthily with the right food and lifestyle. There are other options, but they just address the headache/brain element, they don't fix the ear trouble. However, if they work it might reduce the stress of the condition and therefore help with ear health (which appears to be harmed by stress)
Stress must be eliminated completely - walk away from it - refuse to accept it and don't take it on from others - simply say that it will not be tolerated because you can't deal with it - and if you get improvements take solace in those to reduce your depression and anxiety.
If you exercise try to drink a lot to prevent you getting a headache. I still get headaches after a big run sometimes, and must remind myself to drink lots!
Good luck with your next phase!