pre 9/2010 i would have mav dizzy attacks 4-6 times a year and would attribute it to diet, stress, seasons and lack of sleep. they would be true vertigo attacks but would last for 30 minutes and slowly go away.
after having my 2nd child, 2 days later i woke up with the room spinning SO fast it was the scariest jolt of my life. it has since slowed down but hasn't ever stopped. 1 year later, i am rocky 24/7 and it's horrible. still not sure what happened to me in that hospital room a year ago and why my mav is different now, but i feel like i am drunk, when i lay down on my side i feel like i am rolling down a hill and the only relief i get is when i am in a car and when i am asleep. i've been to the beach a few times and i've forced myself to stare at the horizon and it's like my eyes/brain won't let me- it's so bizarre. it's like my brain always wants to keep jolting.
2 inner ear doctors say my ear is clear, my nuerologist said my brain is clear and now thinks it's damage from a possible vn injury, i've been to vrt but the specialist said she didn't think i suffered from vn and wasn't benefiting from vrt, i don't know what the heck to think and just want answers. i'm thankful all my testing is clear but at least would like something wrong to know what is wrong
topamax has been good at keeping the true vertigo attacks away, but would like something to ease this bad rockiness feeling. on a scale of 1-10 it's a 8.
i am open to try new drugs but of waiting for my new insurance to switch over and try to options. it's comforting to know i'm not the only one constantly moving all the time
Suffered from "vertigo spells" since I was 10. Had my 2nd baby 9/10 and BAM! The vertigo hit and now rocky 24/7...diagnosed with MAV, spontaneous Mal de debarquement syndrome and Lyme Disease. Treatment-Topamax 75mg- has helped with mav attacks