Weaned off Verapamil, I might try Propranolol next...

Propranolol, atenolol, timolol, and nadolol.

Weaned off Verapamil, I might try Propranolol next...

Postby joseph0952 on 06 Nov 2010, 08:33

Hi Everyone,

I spent out of pocket and visited a Neurologist last week... Dr. Gregory Whitman in Los Angeles. He was referred by an acquaintence of mine who also has MAV. Dr. Whitman has worked with Dr. Robert Baloh in the past and believes i have a Vertigo Migraine like condition and or MAV. He is going to recommend my doctor at the Veterans Hosptial to try Propranolol. This is one of the last few med's that I have not tried over 18 years. The Neuroligists at the VA don't appear to either know much about MAV or don't believe there is such a thing so they've given me a difficult time. Dr. Whitman will write up a letter to let my VA Doctor know that he agrees with the diagnosis that Dr. Baloh gave me at UCLA and recommendations for medication. I'm hoping that will help so that i can be treated.

Has anyone here had any luck with Propranolol?

Thanks.

Joe
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Re: Weened off Verapamil, i might try Propanol next...

Postby ilovesalem on 06 Nov 2010, 12:06

hey joe,

because of you, i actually tried my first xanax today! (i've read some posts that has worked for you.) i was desperately dizzy and don't have my appt until next week so borrowed one from my mother (bad i know but she gave me a 0.5) and gave it a shot. it made me really relaxed, took a 2 hour nap but still rocky =( at least i can cross this off the list unless it takes longer to work?

anyway, my dr has started me on propranolol 20 mg and it will be 2 weeks tomorrow- when its actually supposed to work? i believe it's made me more fatigued and has not helped with the dizzy/rocky feeling but am happy that it will hopefully prevent future ones from happening? oh yeah, the first couple days i had slight tingling in my fingers but not for long and get a little lightheaded when i move too fast. start on a low dose! good luck!
Suffered from "vertigo spells" since I was 10. Had my 2nd baby 9/10 and BAM! The vertigo hit and now rocky 24/7...diagnosed with MAV, spontaneous Mal de debarquement syndrome and Lyme Disease. Treatment-Topamax 75mg- has helped with mav attacks
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Re: Weened off Verapamil, i might try Propanol next...

Postby scott on 06 Nov 2010, 14:56

Hey Joe -- this sounds really interesting. Really hope this one works for you. Hannah uses P so you might want to ask her more about it.

Cheers ... Scott :)
Probable vestibular neuritis in 2003 which kicked off chronic migrainous vertigo.
Treatment: lifestyle mods, low-dose paroxetine, valium as required.
Twitter: @mvertigo_guy
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Re: Weaned off Verapamil, i might try Propranolol next...

Postby joseph0952 on 07 Nov 2010, 08:43

Hey ilovesalem,

Well i'm sorry the Xanax did not help with the rocking. It's a god send for me! It is amazing how some drugs help some people while it doesn't do much for another person. Remember, there is also Klonopin. What i've read about Xanax is it helps to suppress the inner-ear nerves. How true that is....not sure.

Please let me know if Propranolol gives you any help.

Thanks,

Joe
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Re: Weaned off Verapamil, i might try Propranolol next...

Postby ilovesalem on 08 Nov 2010, 06:58

Thanks Joe for telling me about the Klonopin- I'll ask my Dr about that on Tuesday!
Best,
Troy
Suffered from "vertigo spells" since I was 10. Had my 2nd baby 9/10 and BAM! The vertigo hit and now rocky 24/7...diagnosed with MAV, spontaneous Mal de debarquement syndrome and Lyme Disease. Treatment-Topamax 75mg- has helped with mav attacks
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Re: Weaned off Verapamil, i might try Propranolol next...

Postby lorcalon on 08 Nov 2010, 08:50

Hi Joe,

I'm not on propranolol, but I do take another beta-blocker - metoprolol (Lopressor/Toprol- which is a selective beta1 blocker (propranolol is non-selective). I've had pretty good result on it (along with lifestyle mods) - it got me from 35% to say 75-80% for much of the time. The side effect profile wasn't too bad for me - although the nightmares in the first month were hair-raising and unexpected - no idea if that is an issue with propranolol. Also was very fatigued for the first month - but a physical tiredness not a brain-fog fatigue, but might have been able to avoid that if I'd titrated up to the 50g 2xday.

My GP picked this as the first line med given it's good side-effect profile (neuro bounced me back to GP to do the meds merry-go-round once diagniosed). Having said that I am about to try adding prothiaden (low dose) to the mix to see if I can get closer to 100% (I'm greedy :lol: )

Good luck with it!
Gabrielle
DX Jan 2010, major symptoms since Oct '09. Currently on 50mg metoprolol am & pm. Daily exercise and a few diet mods.
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Re: Weaned off Verapamil, i might try Propranolol next...

Postby scott on 08 Nov 2010, 09:11

Hey Gabrielle,

How are you going to kick off the Pro? 25 mg right off the bat or will you dump out the little beads and cut it down to a lower dose? I might kick it off at about 12.5 mg this Thursday night.

S
Probable vestibular neuritis in 2003 which kicked off chronic migrainous vertigo.
Treatment: lifestyle mods, low-dose paroxetine, valium as required.
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Re: Weaned off Verapamil, i might try Propranolol next...

Postby lorcalon on 08 Nov 2010, 10:19

Hey Scott - no chance I'll start with a full dose :lol:

I had planned to start on half or quarter tablet, but after your email checked a script and realised they are capsules. So yeah I would say I will start with 1/2 dose.

Is it OK to just take the beads "raw" or should they be mixed in some apple sauce or something?
Gabrielle
DX Jan 2010, major symptoms since Oct '09. Currently on 50mg metoprolol am & pm. Daily exercise and a few diet mods.
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Re: Weaned off Verapamil, i might try Propranolol next...

Postby scott on 08 Nov 2010, 10:34

LOL, we could always sprinkle the beads on some cupcakes!

Yeah, it's ok to just do the beads. Most have done that here with Effexor. You might feel like a junkie though cutting lines of this stuff with a credit card on a mirror. I might follow your lead and start on a quarter as well. I'll be mixing it with Paxil (about 1 mg). Doc said that was no problem.
Probable vestibular neuritis in 2003 which kicked off chronic migrainous vertigo.
Treatment: lifestyle mods, low-dose paroxetine, valium as required.
Twitter: @mvertigo_guy
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Re: Weaned off Verapamil, i might try Propranolol next...

Postby lorcalon on 08 Nov 2010, 12:32

as long as we don't have to snort it through a $10 bill :lol:
Gabrielle
DX Jan 2010, major symptoms since Oct '09. Currently on 50mg metoprolol am & pm. Daily exercise and a few diet mods.
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Re: Weaned off Verapamil, i might try Propranolol next...

Postby scott on 08 Nov 2010, 13:00

:lol: ... I just laughed out loud here at work imaging you vacuuming up Prothiaden beads through a rolled up tenner. The things we have to contemplate to have a normal day ...
Probable vestibular neuritis in 2003 which kicked off chronic migrainous vertigo.
Treatment: lifestyle mods, low-dose paroxetine, valium as required.
Twitter: @mvertigo_guy
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Re: Weaned off Verapamil, i might try Propranolol next...

Postby ilovesalem on 08 Nov 2010, 14:01

Hey Kelly,

What is the difference between a selective beta1 blocker and a non-selective beta blocker?
Thanks in advanced!

Troy
Suffered from "vertigo spells" since I was 10. Had my 2nd baby 9/10 and BAM! The vertigo hit and now rocky 24/7...diagnosed with MAV, spontaneous Mal de debarquement syndrome and Lyme Disease. Treatment-Topamax 75mg- has helped with mav attacks
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Re: Weaned off Verapamil, i might try Propranolol next...

Postby lorcalon on 08 Nov 2010, 15:25

hey Troy,

as I understand it there are different types of beta-adrenergic receptors (B1 and B2 - are you thinking what I'm thinking (for Australians on the board with kids) oh, and B3s.

The B1 selective blockers like the one I'm on only target the B1 receptors. Non selectives target all 3

but I'm not a chemist/biologist so someone else please jump in if I've got that wrong!
Gabrielle
DX Jan 2010, major symptoms since Oct '09. Currently on 50mg metoprolol am & pm. Daily exercise and a few diet mods.
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Re: Weaned off Verapamil, i might try Propranolol next...

Postby ilovesalem on 09 Nov 2010, 15:16

Thank you so much for explaining that! Sounds good to me and makes sense.

Joe, I am in Southern California and am interested with trying to get an appointment with Dr. Baloh- is it impossible? What's the 411 on that?
Suffered from "vertigo spells" since I was 10. Had my 2nd baby 9/10 and BAM! The vertigo hit and now rocky 24/7...diagnosed with MAV, spontaneous Mal de debarquement syndrome and Lyme Disease. Treatment-Topamax 75mg- has helped with mav attacks
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Location: California

Re: Weaned off Verapamil, i might try Propranolol next...

Postby joseph0952 on 10 Nov 2010, 12:28

Hey Ilovesalem,

I have Dr. Baloh's Assistant phone number. Her name is Dr. Cha...phone number (310) 825-5759. Hopefully that can get you in the right direction. Best of Luck!

Joe
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